BATON ROUGE, La (NBC33) — The Baton Rouge community is coming together this weekend to learn more about a terrible disease, Huntington's.
It's a degenerative disease passed down from parent to child. HD kills brain cells and is fatal.
Karen Paterson knows the disease all too well. Her husband and youngest daughter both passed away from Huntington's. Her remaining daughter has also started showing signs of the disease.
Now she wants other people to know about Huntington's and help find a cure. Karen says it's her mission to carry on her family's legacy.
"My girls have just been a source of inspiration really because they've remained strong in the face of something that could be emotionally crippling and they keep going. Just going on day to day is really an accomplishment with a disease like this," says Karen.
Karen and other HD advocates in Baton Rouge are hosting the capitol city's first Huntington's education day this Saturday. It's from 10am to 3pm at the Louisiana State Museum, 660 North 4th Street
In two weeks there will be a walk downtown to raise money for research. The Team Hope Walk for HD is Sunday, October 23 at 1pm at the Arsenal Park on the State Capitol grounds.
For more information, go to www.hdsa.org/louisiana .